About Us

This blog is changing, just as our family is changing. It was originally started to keep in touch with family and friends far away, but when you face a life altering disease EVERY aspect of your life is changed and in some way effected by it. Now I need a place to vent, to share, to help people understand the struggles that we face as a family with 2 children that are struggling with the Disease Eosinophilic Esophogitis, and with all of us having multiple food allergies. So this blog is becoming my journal so to say, an outlet for me to express my frustrations, share my joys, and put all information into one place for those that want to know. Why share something so personal, and often too hard to bare? Well...so much of this disease is silent. We work so hard to help our kids lead a normal life and no one sees the struggles faced daily, and I think it is important to let people know and understand.

What is Eosinophilc Esophigitis?

What is Eosinophilic Esophogitis? Also known as EE, or Eos, or EoE.

First let's start off by saying, there is NO CURE! There is NO FDA approved treatment. And often the only form of successful treatment are large doses of steroids and/or elimination of "trigger" foods, which sometimes as in the case of our 2 boys is an elimination of ALL foods. Forcing them to be on an Elemental Formula ONLY diet and water.

Second let's start with the layman's definition as I know how to explain it, and then I will add links with better medically explained and more in depth definitions. Eosinophils are a form of white blood cell, and in persons with this disorder these eosinophils attack food as if they are a parasite, causing damage to nearby tissue in any part of the digestive tract (in our case the Esophogus). This causes reflux that often does not respond well to reflux meds, vomiting, pain, aversions to food, rashes, diahrea, constipation, and many more symptoms like leg and joint pain, headaches. All of which these symptoms lead to more and more problems from which many you will learn about by reading my posts.

One of the bests places for accurate up to date info go to: Apfed, http://apfed.org/drupal/drupal/index.php

And of course this blog reads most current posts first, so I'll do my best to label important posts to help you catch/keep up.

Monday, March 8, 2010

Ultrasound results

We finally had our ultrasound. Woohoo. Especially after all the drama and headache of getting it. It was also slightly depressing with the military how quick and impersonal it was. But YEAH, HOORAY, we got the news we were looking for. Drumroll please…it’s a boy! Uriah and I are excited, it is truthfully the news we were expecting. We both had a strong feeling it was a boy. Abinadi is still oblivious; mostly annoyed that he can’t lay comfortable on my tummy. I will not be surprised if he regresses when the new baby comes. :o)

Isabelle’s response is the funniest! The first time I told her, (we had prepared her that we were probably having a boy because all she could talk about was how she wanted a sister and we new she would be heartbroken if it was a boy) she was monotone and asked, “Oh, did the doctor tell you that?” Didn’t seem upset but not happy either.
Later Uriah asked her how she felt about having a baby brother, this was her response:
“I want a baby girl, but we’re having a baby boy.” Then, a couple minutes later, she said, “I’m still angry that we are having a baby boy. But just a little angry.”
Needless to say I was literally rolling on the floor laughing. Finally a little while later she said she wasn’t angry anymore.

My true response is that I want the house entirely rearranged for the kid. The kids rooms have to be switched (It only makes sense that the ones sharing should get the larger room, DUH!), and I want the family room moved around so it will be more functional, and to move the daybed which was being used as a couch upstairs for Abinadi (which means we have to move the couch into the family room and buy a new couch for the living room. We either had to buy a bed or a couch, and since we already had a bed, the couch makes more sense! Now we just need to find one we like in our price range.) Don’t you just love nesting?! Uriah comes home and asks, “What do you want me to move today?” Hee Hee. He’s learned quickly. It’s stressful and the house is a mess, but it gives a chance to spring clean and clear the rooms of allergens.

I've posted many posts today to catch family up on the big news around here, so please keep reading on.

1 comment:

Jim, Becky, and Kids said...

Hooray for boys (and girls, except almost all my friends are having boys)! Congratulations!