About Us

This blog is changing, just as our family is changing. It was originally started to keep in touch with family and friends far away, but when you face a life altering disease EVERY aspect of your life is changed and in some way effected by it. Now I need a place to vent, to share, to help people understand the struggles that we face as a family with 2 children that are struggling with the Disease Eosinophilic Esophogitis, and with all of us having multiple food allergies. So this blog is becoming my journal so to say, an outlet for me to express my frustrations, share my joys, and put all information into one place for those that want to know. Why share something so personal, and often too hard to bare? Well...so much of this disease is silent. We work so hard to help our kids lead a normal life and no one sees the struggles faced daily, and I think it is important to let people know and understand.

What is Eosinophilc Esophigitis?

What is Eosinophilic Esophogitis? Also known as EE, or Eos, or EoE.

First let's start off by saying, there is NO CURE! There is NO FDA approved treatment. And often the only form of successful treatment are large doses of steroids and/or elimination of "trigger" foods, which sometimes as in the case of our 2 boys is an elimination of ALL foods. Forcing them to be on an Elemental Formula ONLY diet and water.

Second let's start with the layman's definition as I know how to explain it, and then I will add links with better medically explained and more in depth definitions. Eosinophils are a form of white blood cell, and in persons with this disorder these eosinophils attack food as if they are a parasite, causing damage to nearby tissue in any part of the digestive tract (in our case the Esophogus). This causes reflux that often does not respond well to reflux meds, vomiting, pain, aversions to food, rashes, diahrea, constipation, and many more symptoms like leg and joint pain, headaches. All of which these symptoms lead to more and more problems from which many you will learn about by reading my posts.

One of the bests places for accurate up to date info go to: Apfed, http://apfed.org/drupal/drupal/index.php

And of course this blog reads most current posts first, so I'll do my best to label important posts to help you catch/keep up.

Monday, March 8, 2010

The Name Game

So now that we all know that the baby is a boy, I can finally make Uriah discuss names with me, and he has told me that he doesn't know because he got the name he wanted. So a little background, Abinadi was named because it was Uriah's favorite scripture hero with a story that means a lot to him. He also wanted his son to not just have a scripture name, but a scripture name that could be an example for him, so after many prayers by me I finally realized that his name was supposed to be Abinadi, and when we first saw him we knew he would be strong enough to handle that name!

Now with another boy on the way, I have made Uriah promise me one thing, that this boy be named with the same criteria as Abinadi. A name that has a great story behind it, preferably a scripture or church history story, and a name that can be an example for him. Well Uriah has never been good at discussing names and I need help, so I am openning the subject up for discussion.

Please share with us your favorite scripture or church history heros. Not just a nice name, but a name that can be a good example. I would love any thoughts you might have, feel free to share them with me any way you want, comment, email, phone, facebook.

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