About Us

This blog is changing, just as our family is changing. It was originally started to keep in touch with family and friends far away, but when you face a life altering disease EVERY aspect of your life is changed and in some way effected by it. Now I need a place to vent, to share, to help people understand the struggles that we face as a family with 2 children that are struggling with the Disease Eosinophilic Esophogitis, and with all of us having multiple food allergies. So this blog is becoming my journal so to say, an outlet for me to express my frustrations, share my joys, and put all information into one place for those that want to know. Why share something so personal, and often too hard to bare? Well...so much of this disease is silent. We work so hard to help our kids lead a normal life and no one sees the struggles faced daily, and I think it is important to let people know and understand.

What is Eosinophilc Esophigitis?

What is Eosinophilic Esophogitis? Also known as EE, or Eos, or EoE.

First let's start off by saying, there is NO CURE! There is NO FDA approved treatment. And often the only form of successful treatment are large doses of steroids and/or elimination of "trigger" foods, which sometimes as in the case of our 2 boys is an elimination of ALL foods. Forcing them to be on an Elemental Formula ONLY diet and water.

Second let's start with the layman's definition as I know how to explain it, and then I will add links with better medically explained and more in depth definitions. Eosinophils are a form of white blood cell, and in persons with this disorder these eosinophils attack food as if they are a parasite, causing damage to nearby tissue in any part of the digestive tract (in our case the Esophogus). This causes reflux that often does not respond well to reflux meds, vomiting, pain, aversions to food, rashes, diahrea, constipation, and many more symptoms like leg and joint pain, headaches. All of which these symptoms lead to more and more problems from which many you will learn about by reading my posts.

One of the bests places for accurate up to date info go to: Apfed, http://apfed.org/drupal/drupal/index.php

And of course this blog reads most current posts first, so I'll do my best to label important posts to help you catch/keep up.

Thursday, March 18, 2010


Sometimes blessings come in disguise...sometimes, as a SMACK in the face!

If you've read my earlier posts you know that Abinadi cannot have regular meats, so we've been making the change, and buying a lot of turkey, and used up the last of our moose. We realized we needed to find another source of moose and started asking around at church, no one had much left so we figured we needed to figure something out. (If you remember from before we're on the list to help take care of moose when hit by cars and when you do so, you get to keep the meat. But it's hit or miss when they need you, and who's turn it is.)

Well monday after talking to everyone we get a call. There was a moose up in Eagle River and it was our wards turn to take care of it. WOW, we couldn't believe it! Heavenly Father knew we needed meat for Abinadi and he was providing for us. We were so greatful for the blessing...

...But the story get's better! With most of these situations the moose is hit by a car (I know, roadkill, I try not to think about it!) well we found out this one wasn't. Oddly enough the moose was climbing down a mountain like many moose do everyday, and it fell and broke two of it's legs. So it was lame up on the mountain for two days before it was found. WOW, and yet the story gets even better. A neighborhood dog went missing for those two days, and it was found with the moose pretecting it from birds and other wild animals. I know, crazy huh?! So we got this moose in the freshest form possible, and with the most amount of meat.

I heard the story and I couldn't believe it! Moose do not just fall down a mountain and brake their legs, and they difinitely do not have neighborhood dogs come and protect them for two days! Once again, when you have a need Heavenly Father will provide a way! Even with something as crazy as moose meat!

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