About Us

This blog is changing, just as our family is changing. It was originally started to keep in touch with family and friends far away, but when you face a life altering disease EVERY aspect of your life is changed and in some way effected by it. Now I need a place to vent, to share, to help people understand the struggles that we face as a family with 2 children that are struggling with the Disease Eosinophilic Esophogitis, and with all of us having multiple food allergies. So this blog is becoming my journal so to say, an outlet for me to express my frustrations, share my joys, and put all information into one place for those that want to know. Why share something so personal, and often too hard to bare? Well...so much of this disease is silent. We work so hard to help our kids lead a normal life and no one sees the struggles faced daily, and I think it is important to let people know and understand.

What is Eosinophilc Esophigitis?

What is Eosinophilic Esophogitis? Also known as EE, or Eos, or EoE.

First let's start off by saying, there is NO CURE! There is NO FDA approved treatment. And often the only form of successful treatment are large doses of steroids and/or elimination of "trigger" foods, which sometimes as in the case of our 2 boys is an elimination of ALL foods. Forcing them to be on an Elemental Formula ONLY diet and water.

Second let's start with the layman's definition as I know how to explain it, and then I will add links with better medically explained and more in depth definitions. Eosinophils are a form of white blood cell, and in persons with this disorder these eosinophils attack food as if they are a parasite, causing damage to nearby tissue in any part of the digestive tract (in our case the Esophogus). This causes reflux that often does not respond well to reflux meds, vomiting, pain, aversions to food, rashes, diahrea, constipation, and many more symptoms like leg and joint pain, headaches. All of which these symptoms lead to more and more problems from which many you will learn about by reading my posts.

One of the bests places for accurate up to date info go to: Apfed, http://apfed.org/drupal/drupal/index.php

And of course this blog reads most current posts first, so I'll do my best to label important posts to help you catch/keep up.

Thursday, October 27, 2011

Oh the " talks" we have!

Had another rough night with Abinadi and Enoch. Enoch because I've learned he's a troublemaker and there is no where safe in the house that he can't figure out how to get to and he stole some Wendy's fries. Abinadi because he's having to take meds for a UTI that has ingredients he's allergic to. So after it taking awhile for me to realize that the "voices" in my head were NOT part of a dream, I realized it was Abinadi crying for Mommy to get him Mater. Yup! That's my boy! Can't sleep cuz his tummy's hurting again so he wants his Mater to play with. Needless to say after everyone in the house had been woken up, we had to have a long talk about the proper protocol for when we have tummy aches and can't sleep... and sorry but yelling for Mommy to find your favorite toy isn't one of them!

Then later the next day as I'm trying to convince Abinadi to drink his formula he tells me he can't cuz his tummy hurts, then he all cutely walks up to me twiddling all his fingers together and tells me in his I have an awesome secret voice, "Mommy, my tummy feels like this ( looking at his twiddling fingers) and I can HEAR it!"

Ok well I guess you probably had to be there to grasp the level of "cuteness" so you'll just have to trust me when I say it was adorable! :-)

1 comment:

Gamal Fuad said...