So that leads us now to our first official food trial. We chose bananas because they were a food he used to love. First bites not so good. He cried that they were YUCKY, and it was obvious that he didn't remember how to chew or use his tongue, and he didn't like the texture. A common problem that arises from being entirely elemental and not using those muscles. But we continued on and with coaching from me we've been able to get 1-3 bites of banana in him daily. I want to get more than that but he just cries that he doesn't want it. He will need feeding therapy but we need to get at least some safe food for him first.
I'm afraid he's going to fail bananas though. No obvious allergy signs to bananas, but little problems have started creeping up. He's not sleeping well, he has more saliva, is coughing again and it's increasing everyday. All signs that his reflux is getting worse. But that all could just be because his body is readjusting to having food again. Or that his seasonal allergies or asthma is bothering him. All things that suggest that we have to push through and see what happens.
I hate this waiting game! I hate just waiting for the day that he starts vomiting, stops drinking and everything goes downhill. I feel like I'm a terrible person just waiting for that day, but we have to be certain. To make matters worse he's started getting violent today. You may not think that's anything but when you watch your child battle with a disease daily, you start to notice and learn there are emotional signs and symptoms that show up, and who can blame them? You'd be emotional too if you constantly felt ill.
I'm probably going to extend the 2 weeks to be certain the bananas are safe if no other symptoms arise, but I feel like my life has become a detective novel and I am obsessed with watching and looking for any clues or problems that might or are arising. It's tiring! *SIGH*

Here are my 2 elemental boys during snack time after a hard day of play. This shouldn't be ANY child's snack time. :o(
UPDATE: Bananas were a fail. It took almost 2 weeks to have diffinitive obvious symptoms to make me pull the food, and sadly even though he's been off the food for almost a week now his symptoms kept getting worse. Now I know why I was never able to pinpoint which foods caused the problems.
2 comments:
I can't even begin to imagine what you guys are going through. Just know that you guys are in my constant prayers. I Love You Guys so much, and can't wait to see more of you once you move back to CO.
Thanks for the thoughts and prayers. It will be great to see family again. Isabelle loves seeing the pictures of all her cousins and is so excited to get the chance to meet them all. Love you guys too.
Post a Comment