About Us

This blog is changing, just as our family is changing. It was originally started to keep in touch with family and friends far away, but when you face a life altering disease EVERY aspect of your life is changed and in some way effected by it. Now I need a place to vent, to share, to help people understand the struggles that we face as a family with 2 children that are struggling with the Disease Eosinophilic Esophogitis, and with all of us having multiple food allergies. So this blog is becoming my journal so to say, an outlet for me to express my frustrations, share my joys, and put all information into one place for those that want to know. Why share something so personal, and often too hard to bare? Well...so much of this disease is silent. We work so hard to help our kids lead a normal life and no one sees the struggles faced daily, and I think it is important to let people know and understand.

What is Eosinophilc Esophigitis?

What is Eosinophilic Esophogitis? Also known as EE, or Eos, or EoE.

First let's start off by saying, there is NO CURE! There is NO FDA approved treatment. And often the only form of successful treatment are large doses of steroids and/or elimination of "trigger" foods, which sometimes as in the case of our 2 boys is an elimination of ALL foods. Forcing them to be on an Elemental Formula ONLY diet and water.

Second let's start with the layman's definition as I know how to explain it, and then I will add links with better medically explained and more in depth definitions. Eosinophils are a form of white blood cell, and in persons with this disorder these eosinophils attack food as if they are a parasite, causing damage to nearby tissue in any part of the digestive tract (in our case the Esophogus). This causes reflux that often does not respond well to reflux meds, vomiting, pain, aversions to food, rashes, diahrea, constipation, and many more symptoms like leg and joint pain, headaches. All of which these symptoms lead to more and more problems from which many you will learn about by reading my posts.

One of the bests places for accurate up to date info go to: Apfed, http://apfed.org/drupal/drupal/index.php

And of course this blog reads most current posts first, so I'll do my best to label important posts to help you catch/keep up.

Sunday, December 20, 2009

The Reason for the Season

To help us all remember the true "reason for the season" (Hee Hee, I've heard that saying a million times this Christmas) Isabelle wanted to sing her favorite Christmas song. Translation below.

"In a Little Stable, far across the sea,

was a little baby just like you and me.

Shepards stood around him, Angels watched with care.

For the Babe was Jesus lying smiling there.

Ding dong, ding dong, Christmas Bells are ringing.

(These words were skipped...Ding dong, ding dong happy children singing,

Ding dong, ding dong. What do all the Bells say?)

Ding dong, ding dong. This is Jesus Birthday!

Merry Christmas

She surely looks and sounds like an ANGEL...but is she?


The Lee Clan said...

She is an ANGEL in her Auntie Alyssa's eyes! How precious, I understood every word she said! Love you guys!

Our Family said...

What a sweet girl! Great job on the song, Isabelle!