About Us

This blog is changing, just as our family is changing. It was originally started to keep in touch with family and friends far away, but when you face a life altering disease EVERY aspect of your life is changed and in some way effected by it. Now I need a place to vent, to share, to help people understand the struggles that we face as a family with 2 children that are struggling with the Disease Eosinophilic Esophogitis, and with all of us having multiple food allergies. So this blog is becoming my journal so to say, an outlet for me to express my frustrations, share my joys, and put all information into one place for those that want to know. Why share something so personal, and often too hard to bare? Well...so much of this disease is silent. We work so hard to help our kids lead a normal life and no one sees the struggles faced daily, and I think it is important to let people know and understand.

What is Eosinophilc Esophigitis?

What is Eosinophilic Esophogitis? Also known as EE, or Eos, or EoE.

First let's start off by saying, there is NO CURE! There is NO FDA approved treatment. And often the only form of successful treatment are large doses of steroids and/or elimination of "trigger" foods, which sometimes as in the case of our 2 boys is an elimination of ALL foods. Forcing them to be on an Elemental Formula ONLY diet and water.

Second let's start with the layman's definition as I know how to explain it, and then I will add links with better medically explained and more in depth definitions. Eosinophils are a form of white blood cell, and in persons with this disorder these eosinophils attack food as if they are a parasite, causing damage to nearby tissue in any part of the digestive tract (in our case the Esophogus). This causes reflux that often does not respond well to reflux meds, vomiting, pain, aversions to food, rashes, diahrea, constipation, and many more symptoms like leg and joint pain, headaches. All of which these symptoms lead to more and more problems from which many you will learn about by reading my posts.

One of the bests places for accurate up to date info go to: Apfed, http://apfed.org/drupal/drupal/index.php

And of course this blog reads most current posts first, so I'll do my best to label important posts to help you catch/keep up.

Thursday, December 3, 2009

Pay Attention! And Count! Hint Hint!

I know that it's been a while since I updated everyone...well, not that long, but a lot has passed by. Abinadi turned 1, we had Thanksgiving, and we are preparing for Christmas. I've been sick lately so I'll catch up more later, but people have wondered if our blog is broken, so I thought I'd add some pictures to prove that we are all still here!
I think the decorations came out well!


Can you hear the laughter?



one.two..three...Jump!
I'll try to get the rest of the pictures and stories up soon...er or later! ;)
We love and miss you all! Especially during this holiday season!

4 comments:

The Lee Clan said...

I finally just got it...you guys crack me up! Congratulations...I am so excited for you!

Uriah, Kaelynn, Isabelle, Abinadi, and... said...

Finally, I thought it was obvious! But no one has figured it out without hints!

Heather and Aaron said...

Please, the intelligent side of the family figured it out with the illness, stockings (3) on the fireplace and the and.... at the end! We are so excited for you all. Love Aaron and Heather

Elena Harrison said...

Oh that was easy to figure out!!! Duh the extra stocking is for the new pet you are getting, right? What is it dog, cat, ferrett? Ha Ha just kidding... Congrats!

Oh yah and Mike wanted me to say he figured it out way early on the 4th. He wants to let everyone know he was the first.