About Us

This blog is changing, just as our family is changing. It was originally started to keep in touch with family and friends far away, but when you face a life altering disease EVERY aspect of your life is changed and in some way effected by it. Now I need a place to vent, to share, to help people understand the struggles that we face as a family with 2 children that are struggling with the Disease Eosinophilic Esophogitis, and with all of us having multiple food allergies. So this blog is becoming my journal so to say, an outlet for me to express my frustrations, share my joys, and put all information into one place for those that want to know. Why share something so personal, and often too hard to bare? Well...so much of this disease is silent. We work so hard to help our kids lead a normal life and no one sees the struggles faced daily, and I think it is important to let people know and understand.

What is Eosinophilc Esophigitis?

What is Eosinophilic Esophogitis? Also known as EE, or Eos, or EoE.

First let's start off by saying, there is NO CURE! There is NO FDA approved treatment. And often the only form of successful treatment are large doses of steroids and/or elimination of "trigger" foods, which sometimes as in the case of our 2 boys is an elimination of ALL foods. Forcing them to be on an Elemental Formula ONLY diet and water.

Second let's start with the layman's definition as I know how to explain it, and then I will add links with better medically explained and more in depth definitions. Eosinophils are a form of white blood cell, and in persons with this disorder these eosinophils attack food as if they are a parasite, causing damage to nearby tissue in any part of the digestive tract (in our case the Esophogus). This causes reflux that often does not respond well to reflux meds, vomiting, pain, aversions to food, rashes, diahrea, constipation, and many more symptoms like leg and joint pain, headaches. All of which these symptoms lead to more and more problems from which many you will learn about by reading my posts.

One of the bests places for accurate up to date info go to: Apfed, http://apfed.org/drupal/drupal/index.php

And of course this blog reads most current posts first, so I'll do my best to label important posts to help you catch/keep up.

Tuesday, October 20, 2009

Only in Alaska...

Recently we had the opportunity of eating moose. I truthfully have to say that it was good. And I am a person who can’t stand the taste of deer. I think it is too gamey and can barely stomach it even if it is smothered in sauce.

The funny part is how we came by the moose… In Alaska, non-profit organizations sign up to take turns and help “dispose” of wild animals like moose after they are found dead from a traffic incident or having to be killed for public safety. So our ward was called in for a moose that was killed by a car. All the men met up and “disposed” of the moose, which is now in several different freezers around the ward. We even had a brunch to eat up some of the moose. The funny part was all the men were clamoring to get in on the action of the next moose. So I can truthfully say that so far Alaska is the only place that I know of in the U.S. where it is socially acceptable to eat road kill! And not to just eat it, but to fight for who gets dibs on the next poor animal!

I don’t know about you, but that just cracks me up.


The Lee Clan said...

Awesome! I want moose roadkill!

Jim, Becky, and Kids said...

That is so funny; what a way to build up some frozen food storage!