About Us

This blog is changing, just as our family is changing. It was originally started to keep in touch with family and friends far away, but when you face a life altering disease EVERY aspect of your life is changed and in some way effected by it. Now I need a place to vent, to share, to help people understand the struggles that we face as a family with 2 children that are struggling with the Disease Eosinophilic Esophogitis, and with all of us having multiple food allergies. So this blog is becoming my journal so to say, an outlet for me to express my frustrations, share my joys, and put all information into one place for those that want to know. Why share something so personal, and often too hard to bare? Well...so much of this disease is silent. We work so hard to help our kids lead a normal life and no one sees the struggles faced daily, and I think it is important to let people know and understand.

What is Eosinophilc Esophigitis?

What is Eosinophilic Esophogitis? Also known as EE, or Eos, or EoE.

First let's start off by saying, there is NO CURE! There is NO FDA approved treatment. And often the only form of successful treatment are large doses of steroids and/or elimination of "trigger" foods, which sometimes as in the case of our 2 boys is an elimination of ALL foods. Forcing them to be on an Elemental Formula ONLY diet and water.

Second let's start with the layman's definition as I know how to explain it, and then I will add links with better medically explained and more in depth definitions. Eosinophils are a form of white blood cell, and in persons with this disorder these eosinophils attack food as if they are a parasite, causing damage to nearby tissue in any part of the digestive tract (in our case the Esophogus). This causes reflux that often does not respond well to reflux meds, vomiting, pain, aversions to food, rashes, diahrea, constipation, and many more symptoms like leg and joint pain, headaches. All of which these symptoms lead to more and more problems from which many you will learn about by reading my posts.

One of the bests places for accurate up to date info go to: Apfed, http://apfed.org/drupal/drupal/index.php

And of course this blog reads most current posts first, so I'll do my best to label important posts to help you catch/keep up.

Friday, October 2, 2009

Any Suggestions?

So this year for Halloween, we are trying to be smart. We are trying to be more economical all together as a family and finally get ourselves out of debt. So buying Halloween costumes every year doesn’t save money. I have decided to make Halloween a creativity game! We look all over the house for ideas of different things we want to be, and try to come up with different ideas of things we have to make different costumes, like unused curtains as dresses.
Isabelle has her heart set on being Cinderella this year. She has never seen the movie but thinks all the pictures of Cinderella are just Gorgeous! We found a skirt of mine that we are turning into a Cinderella dress. I have the basics of it made all with things that we already have. But I am stuck, so I am asking for any suggestions. I think the back looks good, but the front needs something and for the life of me I can’t make up my mind as to what I should add. So I thought I would get the opinions from others. Please let me know what you think or any ideas you might have!

Would adding a crown and jewelry be enough? I don’t have any but I was going to try to come up with a way to make those too. If you have any ideas for those let me know. Do I need larger ribbons, jewels, a sash? What are your thoughts? Oh and I don’t want to do anything too damaging to the skirt, I do plan on wearing it again, so no bedazzling like my husband suggested. Hee Hee!
Oh, yeah...Abinadi is probably going to be a Polar Bear; we found a fuzzy one piece outfit that I am going to alter for him.
Please, Please, Please, leave comments and let me know what you think! I am in a creativity slump with this dress and Halloween is slowly creeping up!


The Lee Clan said...

I was totally going for bedazzling! I think that it looks fine with the butterflies, but if you feel it needs something how about a ribbon going across the front just under the breast area! Way cute and creative!

Jim, Becky, and Kids said...

I think it looks great too. A sash or ribbon around the very top or waist would probably add a little bit without hurting your skirt. Great idea!