About Us

This blog is changing, just as our family is changing. It was originally started to keep in touch with family and friends far away, but when you face a life altering disease EVERY aspect of your life is changed and in some way effected by it. Now I need a place to vent, to share, to help people understand the struggles that we face as a family with 2 children that are struggling with the Disease Eosinophilic Esophogitis, and with all of us having multiple food allergies. So this blog is becoming my journal so to say, an outlet for me to express my frustrations, share my joys, and put all information into one place for those that want to know. Why share something so personal, and often too hard to bare? Well...so much of this disease is silent. We work so hard to help our kids lead a normal life and no one sees the struggles faced daily, and I think it is important to let people know and understand.

What is Eosinophilc Esophigitis?

What is Eosinophilic Esophogitis? Also known as EE, or Eos, or EoE.

First let's start off by saying, there is NO CURE! There is NO FDA approved treatment. And often the only form of successful treatment are large doses of steroids and/or elimination of "trigger" foods, which sometimes as in the case of our 2 boys is an elimination of ALL foods. Forcing them to be on an Elemental Formula ONLY diet and water.

Second let's start with the layman's definition as I know how to explain it, and then I will add links with better medically explained and more in depth definitions. Eosinophils are a form of white blood cell, and in persons with this disorder these eosinophils attack food as if they are a parasite, causing damage to nearby tissue in any part of the digestive tract (in our case the Esophogus). This causes reflux that often does not respond well to reflux meds, vomiting, pain, aversions to food, rashes, diahrea, constipation, and many more symptoms like leg and joint pain, headaches. All of which these symptoms lead to more and more problems from which many you will learn about by reading my posts.

One of the bests places for accurate up to date info go to: Apfed, http://apfed.org/drupal/drupal/index.php

And of course this blog reads most current posts first, so I'll do my best to label important posts to help you catch/keep up.

Wednesday, September 2, 2009

First Day of Joy School

Well we started Joy School this week. We are really excited. We are in a Great group of 5 kids with parents who are all very involved and just as excited for the year like we are. Everyone is also very understanding of Isabelle’s allergies and are ready and willing to work with us. I woke Isabelle up and she ran into my room screaming, “Joy School, Joy School, Today is Joy School!” She was sooooo excited! For those of you who don’t know, Joy School is an in home preschool program that focuses on values and preserving different childhood characteristics. We each take turns hosting and teaching the kids so I have 4 weeks off and then one week where I am responsible for everything. I like the thought of a program teaching children and parents how to enjoy childhood and life. They grow up so quickly.
If you want to check it out go to:
http://www.valuesparenting.com/joyschool/index.php



This is the Joy School House a made for the group. My craft for the month.


These are all our Joy School Friends. Yep, Izzy is the little one, she's slouching a little, but I didn't even realize she was this short. WOW :)

3 comments:

The Lee Clan said...

Yea Isabelle you started school, Aunt Alyssa is so excited for you...you will have alot of fun learning and making new friends! Love you Lots!

Jared and Vanessa said...

You are such a great mom!!!! She looks so cute with her back pack and curly hair!!

Maria Bishop said...

Oh Kaelynn, your family is so beautiful! Congrats to your little girl!