About Us

This blog is changing, just as our family is changing. It was originally started to keep in touch with family and friends far away, but when you face a life altering disease EVERY aspect of your life is changed and in some way effected by it. Now I need a place to vent, to share, to help people understand the struggles that we face as a family with 2 children that are struggling with the Disease Eosinophilic Esophogitis, and with all of us having multiple food allergies. So this blog is becoming my journal so to say, an outlet for me to express my frustrations, share my joys, and put all information into one place for those that want to know. Why share something so personal, and often too hard to bare? Well...so much of this disease is silent. We work so hard to help our kids lead a normal life and no one sees the struggles faced daily, and I think it is important to let people know and understand.

What is Eosinophilc Esophigitis?

What is Eosinophilic Esophogitis? Also known as EE, or Eos, or EoE.

First let's start off by saying, there is NO CURE! There is NO FDA approved treatment. And often the only form of successful treatment are large doses of steroids and/or elimination of "trigger" foods, which sometimes as in the case of our 2 boys is an elimination of ALL foods. Forcing them to be on an Elemental Formula ONLY diet and water.

Second let's start with the layman's definition as I know how to explain it, and then I will add links with better medically explained and more in depth definitions. Eosinophils are a form of white blood cell, and in persons with this disorder these eosinophils attack food as if they are a parasite, causing damage to nearby tissue in any part of the digestive tract (in our case the Esophogus). This causes reflux that often does not respond well to reflux meds, vomiting, pain, aversions to food, rashes, diahrea, constipation, and many more symptoms like leg and joint pain, headaches. All of which these symptoms lead to more and more problems from which many you will learn about by reading my posts.

One of the bests places for accurate up to date info go to: Apfed, http://apfed.org/drupal/drupal/index.php

And of course this blog reads most current posts first, so I'll do my best to label important posts to help you catch/keep up.

Monday, August 10, 2009

Trip to the Zoo

So there isn’t much to say about our trip to the zoo. It was fun family time. But the zoo itself was quit disappointing. I am not a zoo person myself! I never liked the smell or that you couldn't always see the animals...but you kind of get excited for your children when you talk about different animals and tell them about actually seeing the animals. It was difficult explaining to Isabelle why there were no zoo animals like elephants, monkeys, zebras, lions, hippos, giraffes, etc.
And the animals we did see either weren’t that spectacular or you can see them around here. Needless to say, we won’t be buying year passes like I had hoped. I never thought I would say that I miss the Cheyenne Mountain Zoo with all it’s hills, but I do. At least we got a few cute pictures and spent some good family time together. We have to look at the positives!

We love and miss you all.

2 comments:

Our Family said...

That sounds like our trips to the zoo. :o) I love the photo of Isabelle looking over her shoulder.

The Lee Clan said...

Yea Family Time! Sorry about the disappointment! The more and more I look a Abinadi, the more and more he looks like Uriah! Love you guys!