About Us

This blog is changing, just as our family is changing. It was originally started to keep in touch with family and friends far away, but when you face a life altering disease EVERY aspect of your life is changed and in some way effected by it. Now I need a place to vent, to share, to help people understand the struggles that we face as a family with 2 children that are struggling with the Disease Eosinophilic Esophogitis, and with all of us having multiple food allergies. So this blog is becoming my journal so to say, an outlet for me to express my frustrations, share my joys, and put all information into one place for those that want to know. Why share something so personal, and often too hard to bare? Well...so much of this disease is silent. We work so hard to help our kids lead a normal life and no one sees the struggles faced daily, and I think it is important to let people know and understand.

What is Eosinophilc Esophigitis?

What is Eosinophilic Esophogitis? Also known as EE, or Eos, or EoE.

First let's start off by saying, there is NO CURE! There is NO FDA approved treatment. And often the only form of successful treatment are large doses of steroids and/or elimination of "trigger" foods, which sometimes as in the case of our 2 boys is an elimination of ALL foods. Forcing them to be on an Elemental Formula ONLY diet and water.

Second let's start with the layman's definition as I know how to explain it, and then I will add links with better medically explained and more in depth definitions. Eosinophils are a form of white blood cell, and in persons with this disorder these eosinophils attack food as if they are a parasite, causing damage to nearby tissue in any part of the digestive tract (in our case the Esophogus). This causes reflux that often does not respond well to reflux meds, vomiting, pain, aversions to food, rashes, diahrea, constipation, and many more symptoms like leg and joint pain, headaches. All of which these symptoms lead to more and more problems from which many you will learn about by reading my posts.

One of the bests places for accurate up to date info go to: Apfed, http://apfed.org/drupal/drupal/index.php

And of course this blog reads most current posts first, so I'll do my best to label important posts to help you catch/keep up.

Friday, November 5, 2010

Halloween 2010

Ok, the reason why I haven't been updating this blog is because either I spend all day trying to upload pictures and it never does, or I spend hours and it won't publish, or like now it's doing funcky stuff so I have no idea which pictures are which and can't comment on them or arrange them. In other words I spend lots of hours on it and it never works, so I get frustrated and don't try. SO sorry!
But here is a quick summary of our Halloween since I can't seem to narate each photo...
Isabelle wanted to be a witch, when I asked her why she told me it was because she wanted to laugh like this, "(use your imagination and insert your cutest witches cackle here.)" Ha Ha Ha Haaaaa!
Abinadi wanted to cackle and do magic like Isabelle, so he got to be a wizard. You have to pay attention to the hat to see that he was the Scorcerer's Apprentice from Fantasia.
Enoch was a ghost with a cute hat that said Boo but sadly I didn't get any pictures because he was either bundled up or in the carier. But my adorable little baby boy is growing SO Fast! He is interested in everything, he is definitely our child. Hee Hee!
I love how adorable my children are!

Once again I am sorry that my computer or my blog never work well enough to post anything...We love and miss you all! Oh and this first picture is Abinadi fiting into his Halloween costume from last year. He LOVES monkeys, or as he calls them, "ah ahs"









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