About Us

This blog is changing, just as our family is changing. It was originally started to keep in touch with family and friends far away, but when you face a life altering disease EVERY aspect of your life is changed and in some way effected by it. Now I need a place to vent, to share, to help people understand the struggles that we face as a family with 2 children that are struggling with the Disease Eosinophilic Esophogitis, and with all of us having multiple food allergies. So this blog is becoming my journal so to say, an outlet for me to express my frustrations, share my joys, and put all information into one place for those that want to know. Why share something so personal, and often too hard to bare? Well...so much of this disease is silent. We work so hard to help our kids lead a normal life and no one sees the struggles faced daily, and I think it is important to let people know and understand.

What is Eosinophilc Esophigitis?

What is Eosinophilic Esophogitis? Also known as EE, or Eos, or EoE.

First let's start off by saying, there is NO CURE! There is NO FDA approved treatment. And often the only form of successful treatment are large doses of steroids and/or elimination of "trigger" foods, which sometimes as in the case of our 2 boys is an elimination of ALL foods. Forcing them to be on an Elemental Formula ONLY diet and water.

Second let's start with the layman's definition as I know how to explain it, and then I will add links with better medically explained and more in depth definitions. Eosinophils are a form of white blood cell, and in persons with this disorder these eosinophils attack food as if they are a parasite, causing damage to nearby tissue in any part of the digestive tract (in our case the Esophogus). This causes reflux that often does not respond well to reflux meds, vomiting, pain, aversions to food, rashes, diahrea, constipation, and many more symptoms like leg and joint pain, headaches. All of which these symptoms lead to more and more problems from which many you will learn about by reading my posts.

One of the bests places for accurate up to date info go to: Apfed, http://apfed.org/drupal/drupal/index.php

And of course this blog reads most current posts first, so I'll do my best to label important posts to help you catch/keep up.

Friday, July 17, 2009

Izzy’s Photography

Sometimes I find that you just need something to occupy the mind of a 3 year old in order to keep your sanity. Today that sanity came in the form of an old camera that she got to take around and be a photographer for the day. Thanks to Special Agent Oso she knew how to work a camera. (All you parents out there probably know who I am talking about) She literally took 156 photos. Thank goodness the world has gone digital and it didn’t require me to waste time and money on getting the photos developed. And now thanks to the wonders of the internet you all get to enjoy her photography that she is so proud of. Don’t worry I am not going to post all 156 photos. But you do get a highlight. Here is the world from the viewpoint of a 3 year old:
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4 comments:

Ariana said...

Wow, I can't believe a three-year-old took those pictures! She's a natural.

July 19, 2009 at 8:55 PM
Ariana said...

Hi, Kaelynn. Sorry, I should've written my name on that last post. This is Ariana from our old Fountain Valley ward. :o) I'm excited I found your blog! I linked to it from Becky's. I want to send you an invitation to our blog (which is set to private). Could you send your email address to me?

Thanks, Kaelynn!

Ariana

fanoftheboard (at) hotmail (dot) com

July 19, 2009 at 9:07 PM
Melanni said...

Hi Kaelynn! This is Melanni Larson-now-Chunn. I found your blog through Becky's, too. You have such a cute family! And I can't believe you're living in Alaska now-what an adventure! If you'd like an invite to my blog send your address to melanni.chunn@gmail.com.

July 20, 2009 at 6:53 AM
Katie said...

Hey Kaelynn!! Your kids are so cute! Sure do miss you!! Glad you guys are enjoying Alaska!!

July 20, 2009 at 8:43 PM

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