About Us

This blog is changing, just as our family is changing. It was originally started to keep in touch with family and friends far away, but when you face a life altering disease EVERY aspect of your life is changed and in some way effected by it. Now I need a place to vent, to share, to help people understand the struggles that we face as a family with 2 children that are struggling with the Disease Eosinophilic Esophogitis, and with all of us having multiple food allergies. So this blog is becoming my journal so to say, an outlet for me to express my frustrations, share my joys, and put all information into one place for those that want to know. Why share something so personal, and often too hard to bare? Well...so much of this disease is silent. We work so hard to help our kids lead a normal life and no one sees the struggles faced daily, and I think it is important to let people know and understand.

What is Eosinophilc Esophigitis?

What is Eosinophilic Esophogitis? Also known as EE, or Eos, or EoE.

First let's start off by saying, there is NO CURE! There is NO FDA approved treatment. And often the only form of successful treatment are large doses of steroids and/or elimination of "trigger" foods, which sometimes as in the case of our 2 boys is an elimination of ALL foods. Forcing them to be on an Elemental Formula ONLY diet and water.

Second let's start with the layman's definition as I know how to explain it, and then I will add links with better medically explained and more in depth definitions. Eosinophils are a form of white blood cell, and in persons with this disorder these eosinophils attack food as if they are a parasite, causing damage to nearby tissue in any part of the digestive tract (in our case the Esophogus). This causes reflux that often does not respond well to reflux meds, vomiting, pain, aversions to food, rashes, diahrea, constipation, and many more symptoms like leg and joint pain, headaches. All of which these symptoms lead to more and more problems from which many you will learn about by reading my posts.

One of the bests places for accurate up to date info go to: Apfed, http://apfed.org/drupal/drupal/index.php

And of course this blog reads most current posts first, so I'll do my best to label important posts to help you catch/keep up.

Thursday, June 3, 2010

Just a little of what's happened here...

I know I've been aweful at keeping up this blog...I'm just working on surviving pregnancy with my house and family intact! :o)
But I figured I'd at least through in a couple pictures so you can see we're still alive.
The kids were really quiet one morning and we found them playing in their Daddy's boots, aren't they cute?


My video clips never work on this so I made a smile box of the videos:

Click to play this Smilebox collage:
Create your own collage - Powered by Smilebox
Personalize your own picture collage

Isabelle graduated from Joy School (You graduate every year)! It was a great experience and Isabelle and I learned a lot! I would suggest this program to anyone! My only advice, make certain that you do it with mothers you get along with and have the same goals and wants for the kids as you do. (ex: not just wanting a place to send their kid three hours a day twice a week!) It made the program hard when the Moms were causing drama and unwilling to compromise when situations came up... Oh well, it's over and done with and now we move onto next year with mothers and kids that I think it will be GREAT!

Posted by at No comments:
Subscribe to: Posts (Atom)